“Scoliosis Care Foundation Provides Awareness”
A letter from a scoliosis patient regarding a greater need for scoliosis awareness:
“I’m from the UK and had single stage anterior surgery (fusion T11-L3) 10 weeks ago. over here, awareness of scoliosis is VERY low and screening is even less common.
I’m basically looking for comments from anybody in the US/Canada on what their experience has been of screening (what has happened, how often and when, by whom etc) and even if your experience has been of a lack of screening (as mine is here)
any response would be gratefully appreciated, you can post here.
Thanks in advance, I look forward to hearing your stories”
Becky
* For further information, please contact Shannon Schmitt, Dr. Deutchman, or Dr. Lamantia at the Scoliosis Care Foundation at 1-800-281-5010
June 18, 2009 at 5:26 pm
My experience with screening is a bit on the negative side:
I didn’t find out that I had scoliosis until I was 14, during a physical exam for sports. I was immediately sent to Riley Childrens hospital in Indianapolis, IN to begin my journey. My parents were curoius why the screening perfomed in school never detected my curvature, (which was very prominent at that point.) We went through the school records and discovered that my scoliosis was PRESENT all the way back to 1st grade! Their reply was that they are NOT required to inform anyone of the results! You can probably understand my frustration- especially since I will undergo surgery in December. I really wish the screening was enforced to inform parents of the results. Otherwise, what is the point?